Featured in: Government
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Ground Breaking Recognition of Lyme Borreliosis in 11th International Classification of Diseases – World Health Organization[CanLyme Note: CanLyme was represented on the international Ad Hoc Committee for Health Continues →
Corruption and Human Rights Violations Against Lyme Doctors, Scientists and Parents Now on United Nations RecordThe 2018 Report ‘The Situation of the Human Rights Defenders of Lyme and Relapsing Fever Continues →
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Recent in: Government
The Situation of Human Rights Defenders of Lyme and Relapsing Fever Borreliosis Patients: Edition One March 6, 2018
Thanks to the tremendous effort of Jenna Luché-Thayer the report was presented at the United Nations in Geneva, Switzerland, in June 2018 by several of us on the The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes representing many different countries affected by poor policy. Authors: Jenna Luché-Thayer, Holly Ahern, Robert Bransfield, Joseph Burrascano, Anne Fierlafijn, Theresa Denham, Huib Kraaijeveld, Continues →
June 3, 2018 Chronicle Herald – Public health failing to address Lyme disease crisis, says author From the article titled “Public Health failing to address Lyme disease crisis says author” this is a quote … “Heather Fairbairn, a spokeswoman with the province’s public health department, issued a statement to the Herald last week saying in part, that Lyme disease and other Continues →
[CanLyme Note: We have had many meetings with the BC CDC over the years pointing out the problems with their testing but were completely ignored. Even this more sensitive test will miss many cases. Meanwhile mothers were being accused of having Munchausen by proxy syndrome by doctors at the BC Children’s Hospital simply because they were not accepting the infectious disease Continues →
[CanLyme Note: The Lyme disease disaster for Canadians is an excellent example of how the ‘self-regulating’ medical colleges and medical associations have woven themselves into the publicly funded health care system positioning themselves as the only experts, and policing any physicians who disagree with them, out of business. No outside scientific expertise is allowed no matter how much harm is done Continues →
Tuesday, April 10, 2018 [CanLyme Note: The Canadian system via the Pubic Health Agency of Canada (PHAC) and the Canadian Institute of Health Research (CIHR) adopted the same corrupted, biased position of the US CDC. Now we need Canadian parliamentarians to do the right thing for the sick. Last year, Health Canada announced there would be a tiny bit of Continues →
CanLyme has questioned the self-policing of physicians for years as it protects bad nonsense – NOW CHANGE MAY HAPPEN? Are our politicians listening?
[CanLyme Note: This is not isolated to Ontario, it is Canada and world-wide. Many provinces and countries have given the right to medical colleges and associations to self-police. The process has been corrupted and abused for years with many doctors given far too light consequences while on the other hand they use self-policing to force doctors to follow bad policy Continues →
Lyme disease in Ireland: This is a global threat that is being denied by government bureaucrats around the world who are tied to the United States Center for Disease Control.
Article on Lyme disease sparks calls for awareness campaign March 11, 2018 A UK SCIENTIST, whose daughter contracted Lyme disease in Bantry, says she would like to be part of an Irish awareness campaign on the tick-borne disease. Responding to reports of high rates of the disease in West Cork and South Kerry, detailed recently in The Southern Star, Helga Frost Continues →
The Canadian Lyme Consortium, representing scientists, clinicians and patients provides an update regarding government promised research grants.
March 9th, 2018 The Canadian Lyme Consortium, representing a united and transparent relationship between patients, clinicians and researchers has issued an update detailing the situation with the Canadian Institute of Health Research (CIHR) granting process. Ethics and good science do not seem to be relevant at CIHR as Health Canada continues to fail Canadians. Read full update
The Saskatchewan government says there have been three cases of Lyme disease in the province since 2008. Five Lyme patients beg to differ. Anika Kosteniuk was 13 years old when a tick bite changed her life. She was on vacation in Virginia, on the acreage of her great-aunt and uncle, when she found an eight-legged bug in her armpit. Continues →
Listen to today’s testimony of Dr. Ralph Hawkins, Dr. Liz Zubek, Canadian Blood Services and the Public Health Agency of Canada in the standing health committee.
June 8th, 2017 You can listen to the interesting testimony here… Dr. Njoo from the Public Health Agency of Canada believes patients are too stupid to be equal partners in setting guidelines on diagnostics and treatment. Only his buddies at AMMI, IDSA and the US CDC are qualified to have the final say… the same group who have failed us Continues →
June 6th, 2017: Watch patient and expert testimony before parliamentary standing committee on health .
Watch presentations before the federal all party standing committee on health as they discuss what was purported to be a federal framework on Lyme disease by the Minister of Health… Watch now
May 30th, 2017 Global TV News The federal framework released by government embraces the status quo and cedes responsibility for Lyme research and management back to the same bureaucratic self appointed experts who have mismanaged the issue for decades. The patient and their experts are excluded from the process yet again. There are a relatively small handful of people within Continues →
Lyme disease patient from Quebec and then, research scientist from University of Alberta draws into question testing and treatment in Canada. Why is Canada being forced to follow US guidelines when we have our own distinct genotypes that vary across the country? Listen here
May 21st, 2017 Tick season raises Lyme disease concerns With tick season underway, a Canadian woman shares her personal story of living with Lyme disease and the years of being misdiagnosed and misunderstood. Allison Vuchnich reports. Dr. Doug Sider, Public Health Ontario, says Lyme is under-reported at least 10 fold. Watch Here
Ottawa: Canadian politicians, scientists, physicians, and advocates unite in request of Minister Philpott to insist upon an ethical process
[CanLyme Note: No disease in history has ever been so massaged and manipulated behind closed doors as Lyme disease (borreliosis) Is profit the motive? Keeping people sick and on pills for every symptom seems to be the approved Canadian policy while they refuse to transparently look at better tests that are available, and they refuse to allow potentially curative treatments.] View Continues →