Featured in: Lyme Controversy
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LANDMARK PARTNERSHIP PAVES WAY FOR CANADA’S FIRST RESEARCH FACILITY TO IMPROVE LYME DISEASE TESTING AND TREATMENT
New G. Magnotta Lyme Disease Research Lab to be Established at the University of Guelph; $1.4 Continues → -
Listen to today’s testimony of Dr. Ralph Hawkins, Dr. Liz Zubek, Canadian Blood Services and the Public Health Agency of Canada in the standing health committee.
June 8th, 2017 You can listen to the interesting testimony here… Dr. Njoo from the Public Continues → -
New York Times: More Than 80 Percent of Patient Groups Accept Drug Industry Funds, Study Shows
[CanLyme Note: We have been approached by various pharma industry to work with them but we Continues → -
Medical community failing Lyme patients, Calgary doctor says
Elizabeth Payne, Ottawa Citizien, May 16th, 2016 Canada’s medical establishment came under Continues →
Recent in: Lyme Controversy
Saskatchewan: Sask. Lyme disease patients are falling through the cracks
The Saskatchewan government says there have been three cases of Lyme disease in the province since 2008. Five Lyme patients beg to differ. Anika Kosteniuk was 13 years old when a tick bite changed her life. She was on vacation in Virginia, on the acreage of her great-aunt and uncle, when she found an eight-legged bug in her armpit. Continues →
Two women joined in a mission to learn more about a still misunderstood condition
[CanLyme Note: CanLyme and the G Magnotta Foundation for Vector Borne Diseases have worked together for 5 years to bring this research program to fruition. This is the first step in a major thrust to aid in diagnostics, inform treatment, and bring much needed knowledge to the Canadian medical community.] CTV National News: Motivated by trajedy. July 23, 2017 After her Continues →
Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation
[CanLyme Note: CanLyme was approached by Jenna Luché-Thayer early this year after her finding out that the World Health Organization (WHO) had held a meeting in November 2016 regarding updating the WHO International Classification of Diseases codes (ICD codes) relative to tick borne diseases. WHO is mandated to work with stakeholders yet no patient groups were asked to attend the Continues →
Global News: Lone Star ticks that cause red meat allergies are on their way to Canada
Jun 27th, 2017 By Carmen Chai It looks like Lyme disease isn’t the only thing Canadians need to worry about contracting from ticks. A bite from the Lone Star tick can trigger an allergy to red meat, and the tiny bug is making its way into Canada. For decades, scientists kept a watchful eye over the Lone Star tick and Continues →
Vancouver Sun: Longtime B.C. environmental activist Gwen Barlee dies of cancer
[CanLyme Note: Gwen contracted Lyme disease many years ago and was a well spoken activist who despised the double-talk and arrogance of the bureaucrats who have misled Canadians for years on Lyme disease. She was a great friend and ally of the Lyme community and will be deeply missed.] Vancouver Sun by Stephanie Ip Published on: June 23, 2017 Gwen Barlee, a Continues →
CTV News Toronto: Students warned because ticks are found at schools.
Kids picking up ticks at schools. Not only found in wooded areas. This further emphasizes that the over emphasis from government about ticks being only found in certain area is a harmful and misleading policy. Had patients been involved in policy making like they are on most other diseases the public would be much more aware and protected, patients would Continues →
France: Chronic Lyme is real and treat with long term antibiotics.
Inside Europe: Lyme disease on the rise in France Lyme disease, which you get when bitten by an infected tick, has reached epidemic proportions in France. With 33,000 new officially confirmed cases last year, the government has launched an action plan to fight it. John Laurenson reports from the village of Feucherolles in central France on the spread of a Continues →
CBC News: Lyme disease research, funding falling behind in Canada
June 18th, 2017 – by Jennifer Seiff for CBC News When I got sick in May 2016 with what I suspected was Lyme disease, I learned fast about tick-borne illnesses in Canada. What I learned was that out-of-date lab tests mean many people may altogether miss a diagnosis of Lyme — an infectious disease spread through the bite of infected ticks that can produce Continues →
CTV Winnipeg: 12-year-old boy suffers infection from wood tick
June 13th, 2017 … “I felt something on my back, so I pulled it off and it was a tick,” said Ferguson. “So I just killed it and threw it away.” Logan said it was a wood tick, so he didn’t give it a second thought. But a couple of days later he started feeling sick with headaches and fatigue. Continues →
With great sadness we report that the Canadian Lyme community has lost a valuable friend and asset.
Debra Fraleigh, an articulate and caring individual who worked endlessly behind the scenes researching evidence, evaluating government and medical leadership statements on Lyme disease, and then writing excellent letters of rebuttal, lost her battle with cancer on June 9th, 2017. Debra, like far too many Canadians also battled Lyme disease and then, battled the medical system that let her and Continues →
June 6th, 2017: Watch patient and expert testimony before parliamentary standing committee on health .
Watch presentations before the federal all party standing committee on health as they discuss what was purported to be a federal framework on Lyme disease by the Minister of Health… Watch now
Patients excluded by federal framework – 4 million to be squandered on yet more data gathering.
May 30th, 2017 Global TV News The federal framework released by government embraces the status quo and cedes responsibility for Lyme research and management back to the same bureaucratic self appointed experts who have mismanaged the issue for decades. The patient and their experts are excluded from the process yet again. There are a relatively small handful of people within Continues →
CBC radio: Lyme patient and researcher question government framework.
Lyme disease patient from Quebec and then, research scientist from University of Alberta draws into question testing and treatment in Canada. Why is Canada being forced to follow US guidelines when we have our own distinct genotypes that vary across the country? Listen here
CBC News Montreal: Doctors afraid of losing their licence if they diagnose and treat Lyme disease properly
May 28th, 2017 When Arlene Rill was bitten by a tick in Montreal three years ago, she knew nothing about Lyme disease. She had no idea she would become so ill, and she never imagined enduring the kind of pain she’s been living with ever since. “I live with huge stomach issues, terrible [headaches], pain in my ears, ringing in my ears, inflammation Continues →
Canada-wide VOCAL events planned for June 3rd, 2017
VOCAL – Voices Of Canadians About Lyme June 3rd, 2017 As Canadians in every province and territory become increasingly concerned about Lyme disease and the denial of access to care, they are speaking out. Government bureaucrats have refused to meaningfully engage patients and their experts on the issues that matter most – diagnostics and treatment. Lyme disease is controlled by Continues →