Featured in: Voices on Lyme
Virginia passes law forcing physicians to disclose the limitations of tests
Va. now must disclose the flaws in Lyme disease testing Tuesday, February 26, 2013 BY MARKUS SCHMIDT Richmond Times-Dispatch Lyme disease is one of the fastest-growing infectious diseases in the United States, but despite testing, many patients are not aware that they are infected until it is too late. New legislation passed by Virginia’s General Assembly is supposed to change Continues →-
Canada: A systematic review on the impact of gestational Lyme disease in humans on the fetus and newborn
[CanLyme Note: We at CanLyme want to thank Sue Faber and Jennifer Kravis for their excellent Continues → -
United States: Tick-Borne Disease Working Group 2018 Report to Congress
November 14th, 2018 “A comprehensive understanding of the full economic and societal Continues → -
Lyme disease vastly under-detected in Canada, according to new study
Mount A biologist co-authors research that suggests only 3-4% of Lyme cases are officially Continues → -
Twins Ice Cream Parlour in lovely Port Rowan, Ontario, for years has been very active in raising awareness and funds for Lyme disease.
On the north shores of Lake Erie sits the idyllic community of Port Rowan, Ontario. It is a Continues →
Recent in: Voices on Lyme
Lyme Encephalopathy: Impact on Quality of Life
B.L. Goldklang (1), S.S. Festa (1), and J.S. Hason (1,2). Lyme Disease Coalition of New York and Connecticut, Katonah, NY, USA (1); Arthritis Foundation, Long Island, NY, USA (2). Lyme encephalopathy has been defined in the medical literature as a “mild confusional state” characterized by subtle disturbances in memory, mood, and sleep.1’3 To patients with this syndrome, however, this mild Continues →
Canadian government asked by international Health Equity committee to reverse secretive, harmful, and unethical interference that will affect mothers and children worldwide.
December 22, 2018 Dear Prime Minister Trudeau, Honorable Minister Ginette Petitpas-Taylor, Honorable Minister Jody Wilson-Rebould, Dr. Mithani, Dr. Tam, Honorable Andrew Scheer, Elizabeth May and Jagmeet Singh and Kimberly Elmslie, I am the Director of the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee). The Ad Hoc Committee is fully voluntary international group including Continues →
Doctors, public left in the dark on danger to babies – Chronicle Herald
Published in the Chronicle Herald newspaper December 21, 2018 by Jane Bailey The following statement is false. You can only get Lyme disease from a black-legged tick. The next two statements are true. You can pass Lyme disease to your unborn baby. Your baby can suffer very serious adverse outcomes, including from miscarriage, stillbirth, and newborn death, as well as Continues →
BREAKING NEWS: The Public Health Agency of Canada Secretly Implements Global Act Against Children with Congenital Lyme
[CanLyme Note: As a result of the allegations revealed in the below article by Jenna Luche-Thayer, CanLyme wrote the following letter to Canadian leaders, sent December 21st, 2018, “Dear Prime Minister Trudeau, Honorable Minister Ginette Petitpas-Taylor, Honorable Minister Jody Wilson-Rebould, Dr. Mithani, Dr. Tam, Honorable Andrew Scheer, Elizabeth May and Jagmeet Singh, The news that we have received from within the Continues →
Toronto Star: Everything about Lyme disease is steeped in controversy. Now some doctors are too afraid to treat patients
[CanLyme Note: In the below article there are outrageous, disgraceful, and dangerous comments by Tara Moriarty and Todd Hatchette. Tara says a study showed labs returning 60% false positive test results which is simply not true, or in other words, a blatant lie. That study was not powered to determine true positive or negative results. The conclusion of that study was, Continues →
Learning From Patients’ Experiences Related To Diagnostic Errors Is Essential For Progress In Patient Safety
Health Affairs : Nov 2108 10.1377/hlthaff.2018.0698 HEALTH AFFAIRS 37, NO. 11 (2018): 1821–1827 ABSTRACT Diagnostic error research has largely focused on individual clinicians’ decision making and system design, while overlooking information from patients. We analyzed a unique new data source of patient- and family-reported error narratives to explore factors that contribute to diagnostic errors. From reports of adverse medical events Continues →
Ireland: Lyme Disease centre a positive step
[CanLyme Note: Come-on Canada, wake up, we too need a facility that will actually acknowledge the science, the uncertainty, and stop using patients as pawns in a strange game of ego and politics. Ego and politics yields disability, death, employers losing their workforce, families losing their homes and savings.] Nov 27, 2018 “Despite Lyme Disease being the most common zoonotic disease Continues →
‘Every season is tick season’: Experts warn of winter Lyme disease risk
People have ‘let their guard down’ and aren’t checking for ticks as weather cools, says zoologist Laurenne Schiller loves taking her dog Cousteau for walks along Halifax trails as the weather cools. But even after the first dusting of snow this week, each walk finishes with a head-to-toe check for blacklegged ticks on her and her collie. “”They’re Continues →
Halifax: Unconscious Collective Vocal Ensemble (UCVE) to stage two performances to raise funds for CanLyme
Nov 24, 2018 Save the dates!! For a truly unique experience that you will love come and see the Unconscious Collective Vocal Ensemble (UCVE). They will be putting on two performances in the KTS Red Room, University of King’s College in Halifax… 7 PM Friday the 30th of November (18-11-30) 7 PM Saturday December 1st, 2018 (18-12-01) Bring your family and friends!! These performances will Continues →
Papineau Case Against Doctors Delayed an Unreasonable Three Years – A new Charter of Rights Case Perhaps?
Nov 22, 2018 Papineau case delayed 3 years!! The delays in the Papineau case against his physicians may end up being a Charter of Rights case. Legislation has been introduced focused on the criminal justice system but the civil justice system does not seem to be given the same priority. This leaves those with legitimate claims against people or Continues →
United States Annual Cases of Lyme Disease for 2017 Over 400,000
[CanLyme Note: The numbers reflected by the CDC in no way represent the total number of cases occurring annually in the USA. As per the CDC press release in 2013 they acknowledge that “surveillance data” only gathers about 10% of the true numbers of cases putting a more realistic total annual count for 2017 at over 400,000 cases.] ————————————————- In 2017, Continues →
Mount Kisco Lyme disease doctor sues blogger for $1M citing libel
Nov 13th, 2018 A Mount Kisco physician who specializes in the treatment of Lyme disease is suing a blogger for $1 million for allegedly misrepresenting his disciplinary action for professional misconduct. Dr. Daniel Cameron sued Jann Bellamy, a Tallahassee, Florida lawyer and activist for science-based standards in health care, Nov. 8 in federal court in White Plains. Cameron Cameron claims Continues →
Canadian Frank Papineau sues physicians Dr. Pablo Romero-Sierra, Dr. Johnny Brisebois in Ontario Superior court. Trial to start November 26th, 2018
[UPDATE: This case has now been adjourned (postponed) by the courts for 3 years!! They allege they do not have the judicial resources to hear this until then, then there will likely be another excuse. Was this a political decision? How does this postponement compare to other adjourments?] Nov. 12, 2018 Ontario, Canada resident Frank Papineau has had enough and Continues →
14 celebrities who have opened up about battling Lyme disease
November 10th, 2018 In recent years, the medical spotlight has increasingly been shining on Lyme disease, the bacterial tick-borne illness that often comes with a host of vague, mysterious symptoms. The widespread illness is often considered the “great imitator” because its symptoms typically mimic other health conditions like rheumatoid arthritis, fibromyalgia, chronic fatigue syndrome, multiple sclerosis, and others. Getting a proper Lyme disease Continues →
OPINION: Lyme disease tunnel vision plagues provincial authorities
Nov 3rd, 2018 Chronicle Herald newspaper Halifax, Nova Scotia, Canada by Jane Bailey. Re: “Nova Scotia’s health system has a handle on Lyme” (Sept. 18 opinion piece by Dr. Robert Strang). I was appalled at the inaccuracy and inadequacy of the information that he is supplying to Nova Scotians — patients and doctors — about Lyme disease. A 2012 Health Continues →