Featured in: Voices on Lyme
Virginia passes law forcing physicians to disclose the limitations of tests
Va. now must disclose the flaws in Lyme disease testing Tuesday, February 26, 2013 BY MARKUS SCHMIDT Richmond Times-Dispatch Lyme disease is one of the fastest-growing infectious diseases in the United States, but despite testing, many patients are not aware that they are infected until it is too late. New legislation passed by Virginia’s General Assembly is supposed to change Continues →-
Unprecedented claim against the CDC over Lyme tests
August 23, 2017 written by Huib In the USA an unprecedented anti-trust law suit of $57 million Continues → -
LANDMARK PARTNERSHIP PAVES WAY FOR CANADA’S FIRST RESEARCH FACILITY TO IMPROVE LYME DISEASE TESTING AND TREATMENT
New G. Magnotta Lyme Disease Research Lab to be Established at the University of Guelph; $1.4 Continues → -
Listen to today’s testimony of Dr. Ralph Hawkins, Dr. Liz Zubek, Canadian Blood Services and the Public Health Agency of Canada in the standing health committee.
June 8th, 2017 You can listen to the interesting testimony here… Dr. Njoo from the Public Continues → -
Medical community failing Lyme patients, Calgary doctor says
Elizabeth Payne, Ottawa Citizien, May 16th, 2016 Canada’s medical establishment came under Continues →
Recent in: Voices on Lyme
Watch New York State Senate Public Hearing on Lyme and Tick Borne Diseases
LYME SCI: Re-cap of New York’s Lyme disease hearing On August 29, the New York State Senate’s Task Force on Lyme and Tick-borne Diseases held a public hearing, with participation from many stakeholders. Public health officials, scientists, patients, and doctors from IDSA and ILADS all addressed the committee hearing, which was streamed live to a national audience. Senator Sue Serino, Continues →
BABESIA CASES SKYROCKET IN WISCONSIN WITH A 26-FOLD INCREASE
by Daniel J. Cameron, MD, MPH In Wisconsin, between 2001 and 2015, “there was a 26-fold increase in the incidence of confirmed babesiosis, in addition to geographic expansion,” according to MMWR. [1] The report listed suburbanization, forest fragmentation patterns, and warming average temperatures as potential causes behind the surge. The rising prevalence of co-infections in rodents may also be to blame for the Continues →
Saskatchewan: Sask. Lyme disease patients are falling through the cracks
The Saskatchewan government says there have been three cases of Lyme disease in the province since 2008. Five Lyme patients beg to differ. Anika Kosteniuk was 13 years old when a tick bite changed her life. She was on vacation in Virginia, on the acreage of her great-aunt and uncle, when she found an eight-legged bug in her armpit. Continues →
Two women joined in a mission to learn more about a still misunderstood condition
[CanLyme Note: CanLyme and the G Magnotta Foundation for Vector Borne Diseases have worked together for 5 years to bring this research program to fruition. This is the first step in a major thrust to aid in diagnostics, inform treatment, and bring much needed knowledge to the Canadian medical community.] CTV National News: Motivated by trajedy. July 23, 2017 After her Continues →
Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation
[CanLyme Note: CanLyme was approached by Jenna Luché-Thayer early this year after her finding out that the World Health Organization (WHO) had held a meeting in November 2016 regarding updating the WHO International Classification of Diseases codes (ICD codes) relative to tick borne diseases. WHO is mandated to work with stakeholders yet no patient groups were asked to attend the Continues →
Vancouver Sun: Longtime B.C. environmental activist Gwen Barlee dies of cancer
[CanLyme Note: Gwen contracted Lyme disease many years ago and was a well spoken activist who despised the double-talk and arrogance of the bureaucrats who have misled Canadians for years on Lyme disease. She was a great friend and ally of the Lyme community and will be deeply missed.] Vancouver Sun by Stephanie Ip Published on: June 23, 2017 Gwen Barlee, a Continues →
France: Chronic Lyme is real and treat with long term antibiotics.
Inside Europe: Lyme disease on the rise in France Lyme disease, which you get when bitten by an infected tick, has reached epidemic proportions in France. With 33,000 new officially confirmed cases last year, the government has launched an action plan to fight it. John Laurenson reports from the village of Feucherolles in central France on the spread of a Continues →
CBC News: Lyme disease research, funding falling behind in Canada
June 18th, 2017 – by Jennifer Seiff for CBC News When I got sick in May 2016 with what I suspected was Lyme disease, I learned fast about tick-borne illnesses in Canada. What I learned was that out-of-date lab tests mean many people may altogether miss a diagnosis of Lyme — an infectious disease spread through the bite of infected ticks that can produce Continues →
With great sadness we report that the Canadian Lyme community has lost a valuable friend and asset.
Debra Fraleigh, an articulate and caring individual who worked endlessly behind the scenes researching evidence, evaluating government and medical leadership statements on Lyme disease, and then writing excellent letters of rebuttal, lost her battle with cancer on June 9th, 2017. Debra, like far too many Canadians also battled Lyme disease and then, battled the medical system that let her and Continues →
June 6th, 2017: Watch patient and expert testimony before parliamentary standing committee on health .
Watch presentations before the federal all party standing committee on health as they discuss what was purported to be a federal framework on Lyme disease by the Minister of Health… Watch now
Patients excluded by federal framework – 4 million to be squandered on yet more data gathering.
May 30th, 2017 Global TV News The federal framework released by government embraces the status quo and cedes responsibility for Lyme research and management back to the same bureaucratic self appointed experts who have mismanaged the issue for decades. The patient and their experts are excluded from the process yet again. There are a relatively small handful of people within Continues →
CBC radio: Lyme patient and researcher question government framework.
Lyme disease patient from Quebec and then, research scientist from University of Alberta draws into question testing and treatment in Canada. Why is Canada being forced to follow US guidelines when we have our own distinct genotypes that vary across the country? Listen here
CBC News Montreal: Doctors afraid of losing their licence if they diagnose and treat Lyme disease properly
May 28th, 2017 When Arlene Rill was bitten by a tick in Montreal three years ago, she knew nothing about Lyme disease. She had no idea she would become so ill, and she never imagined enduring the kind of pain she’s been living with ever since. “I live with huge stomach issues, terrible [headaches], pain in my ears, ringing in my ears, inflammation Continues →
Canada-wide VOCAL events planned for June 3rd, 2017
VOCAL – Voices Of Canadians About Lyme June 3rd, 2017 As Canadians in every province and territory become increasingly concerned about Lyme disease and the denial of access to care, they are speaking out. Government bureaucrats have refused to meaningfully engage patients and their experts on the issues that matter most – diagnostics and treatment. Lyme disease is controlled by Continues →
Global TV: Ontario resident’s struggle with Lyme disease and the medical system.
May 21st, 2017 Tick season raises Lyme disease concerns With tick season underway, a Canadian woman shares her personal story of living with Lyme disease and the years of being misdiagnosed and misunderstood. Allison Vuchnich reports. Dr. Doug Sider, Public Health Ontario, says Lyme is under-reported at least 10 fold. Watch Here