Category Archives: News from CanLyme

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‘Scary World’ of Generic Drug Manufacturing, Revealed

[CanLyme Note: This is very important for those being treated for Lyme disease who may not be responding to the treatment.  It may be bad medication. Talk to your doctor and pharmacist to possibly switch manufacturers. One wonders what Health Canada is doing about this serious problem.] Ellie Kincaid June 06, 2019 In 2008, investigative journalist Katherine Eban started digging into the generic Continues →

Toronto Sun: Ticks: A ticking Lyme bomb

May 26th, 2019 Nice weather is here and you’re out and about? Be on the lookout for eight-legged menaces on the march. Tick populations armed with the Borrelia bacteria are increasingly creeping into Canada, expanding and growing – and so too the number of tick-borne diseases, predominantly Lyme. It’s a ticking Lyme bomb, and vastly under-detected across Canada. Dr. Vett Continues →

Latest research shows Canada’s decision to fund only one large national Lyme research conglomerate goes against creation of new ideas.

[CanLyme Note: Even worse is that the 4 million tax payer dollars given to the conglomerate, Canadian Lyme Disease Research Network (CLyDRN), is now controlled by members of the anti-science/ethics private group the Association of Medical Microbiology and Infectious Disease of Canada (AMMI) which is the puppet arm of the highly controversial Infectious Disease Society of America (IDSA). Most of the Continues →

Lyme advocates say Canada offers “toxic tokenism” to patients

The Canadian government recently announced new investment in Lyme disease research. However, Canadian Lyme advocates fear that the patient voice will be excluded from the decision-making process. In the following article, the Canadian Lyme Consortium (CLC)–made up of advocates, patients, researchers and practitioners–offers background and context. By Vett Lloyd, PhD; Liz Zubek, MD, CCFP FCFP; Sue Faber and Jennifer Kravis, co-founders, LymeHope; Janet Sperling, CanLyme; Linda Kelso, Continues →

Canadian government asked by international Health Equity committee to reverse secretive, harmful, and unethical interference that will affect mothers and children worldwide.

December 22, 2018 Dear Prime Minister Trudeau, Honorable Minister Ginette Petitpas-Taylor, Honorable Minister Jody Wilson-Rebould, Dr. Mithani, Dr. Tam, Honorable Andrew Scheer, Elizabeth May and Jagmeet Singh and Kimberly Elmslie, I am the Director of the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee). The Ad Hoc Committee is fully voluntary international group including Continues →

Toronto Star: Everything about Lyme disease is steeped in controversy. Now some doctors are too afraid to treat patients

[CanLyme Note: In the below article there are outrageous, disgraceful, and dangerous comments by Tara Moriarty and Todd Hatchette. Tara says a study showed labs returning 60% false positive test results which is simply not true, or in other words, a blatant lie. That study was not powered to determine true positive or negative results. The conclusion of that study was, Continues →

United States Annual Cases of Lyme Disease for 2017 Over 400,000

[CanLyme Note: The numbers reflected by the CDC in no way represent the total number of cases occurring annually in the USA.  As per the CDC press release in 2013 they acknowledge that “surveillance data” only gathers about 10% of the true numbers of cases putting a more realistic total annual count for 2017 at over 400,000 cases.]  ————————————————- In 2017, Continues →

Mount Allison University’s Lyme Research Network presents their 2017 – 2018 report on research funded by the Canadian Lyme Disease Foundation

Another successful year building capacity and knowledge within the Canadian science community. These funded students will be our near-future experts. “Overview On May 2017, Mount Allison University announced the formation of the Mount Allison Lyme Research Network, formed with support of the Canadian Lyme Disease Foundation. This network consists of 14 researchers united to provide a comprehensive approach to Lyme Continues →

Canadian Lyme disease patient groups united in rejecting the ‘one research network only’ concept of the federal government

[CanLyme Note: There is already another pan-Canadian research network that has been up and running for over a year, the Canadian Lyme Consortium. This network works closely with the patient groups together with physicians and scientists and has from it’s formation.] Joint press release “Lyme patient groups from across Canada are unified in their concern over the federal Minister of Health’s Continues →

The Situation of Human Rights Defenders of Lyme and Relapsing Fever Borreliosis Patients: Edition One March 6, 2018

Thanks to the tremendous effort of Jenna Luché-Thayer the report was presented at the United Nations in Geneva, Switzerland, in June 2018 by several of us on the The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes representing many different countries affected by poor policy. Authors: Jenna Luché-Thayer, Holly Ahern, Robert Bransfield, Joseph Burrascano, Anne Fierlafijn, Theresa Denham, Huib Kraaijeveld, Continues →

G. Magnotta Lyme Disease Research Lab at University of Guelph is looking for participants in study.

July 19th, 2018 Excellent work is being done at the University of Guelph and we at CanLyme encourage people to participate… “The University of Guelph is currently recruiting participants for a study jointly offered by researchers in the Department of Population Medicine, and the G. Magnotta Lyme Disease Research Lab. The study (REB # 18-05-008) will examine the interactions that Continues →

June 23rd, 2018 A CBC online news article… CanLyme offers notes of how clever messaging from “officials” slants the truth so CanLyme is “setting the record straight”.

June 23rd, 2018 A CBC online news article… CanLyme offers notes of how clever messaging from “officials” slants the truth so CanLyme is “setting the record straight”. “Lyme disease surges in Quebec: What you need to know to protect yourself” “Lyme disease is treatable if it’s caught early enough” [CanLyme Note: Lyme disease, a borreliosis, is treatable even in most Continues →

To Hell and Back: denial of access to health care in Canada. Another disgraceful failure of the Public Health Agency of Canada, now a Human Rights issue

June 19th, 2018 This is another example of the disgraceful anti-science, anti-collaborative management of health care in Canada. Federal and provincial health authorities, devoid of oversight by patients and their experts have total disregard for the life and well being of untold thousands of Canadians whose numbers are growing annually. Holding meeting after meeting with no progress, no action plan, no Continues →

Corruption and Human Rights Violations Against Lyme Doctors, Scientists and Parents Now on United Nations Record

The 2018 Report ‘The Situation of the Human Rights Defenders of Lyme and Relapsing Fever Borreliosis Patients’ was submitted to Special Rapporteur Michel Forst and to Special Rapporteur Dr. Dainius Puras of the United Nations in March 2018. This resulted in a meeting between United Nations Human Rights Council Special Rapporteur Forst and medical professionals, scientists, human rights experts and Continues →