Category Archives: News from CanLyme

Recent in: News from CanLyme

‘Every season is tick season’: Experts warn of winter Lyme disease risk [bitten while xmas tree hunting]

[CanLyme Note: Ticks are active in temperatures of minus 4 degrees Celsius and above] November 22, 2017 by Marina von Stackelberg CBCNEWS People have ‘let their guard down’ and aren’t checking for ticks as weather cools, says zoologist   Laurenne Schiller loves taking her dog Cousteau for walks along Halifax trails as the weather cools. But even after the first dusting Continues →

Lyme Disease Patients File Federal Antitrust Suit Against Infectious Disease Specialists & Health Insurers

Nov 15th, Last Friday, 28 patients filed a federal antitrust lawsuit against the Infectious Diseases Society of America, eight health insurance companies, and seven medical doctors, Courthouse News reported yesterday, “because health insurers are denying coverage with bogus guidelines established by their paid consultants, who falsely say the disease can always be cured with a month of antibiotics.” Contrary to the often-reported claim that Lyme disease Continues →

Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation

[CanLyme Note: CanLyme was approached by Jenna Luché-Thayer early this year after her finding out that the World Health Organization (WHO) had held a meeting in November 2016 regarding updating the WHO International Classification of Diseases codes (ICD codes) relative to tick borne diseases. WHO is mandated to work with stakeholders yet no patient groups were asked to attend the Continues →

With great sadness we report that the Canadian Lyme community has lost a valuable friend and asset.

Debra Fraleigh, an articulate and caring individual who worked endlessly behind the scenes researching evidence, evaluating government and medical leadership statements on Lyme disease, and then writing excellent letters of rebuttal, lost her battle with cancer on June 9th, 2017. Debra, like far too many Canadians also battled Lyme disease and then, battled the medical system that let her and Continues →

Watch Mount Allison University Lyme Research Network announcement partnering with the Canadian Lyme Disease Foundation

May 5th, 2017 One of the pillars within the mission statement of the Canadian Lyme Disease Foundation is promoting research. We are pleased to announce our partnership with Mount Allison University in assisting their Lyme Disease Research Network with funding. Developing a broad capacity within Canadian universities to cope with what the government of Canada has admitted is a coming Continues →

Mount Allison University and Canadian Lyme Disease Foundation announce partnership in research.

Mount A researchers uniting expertise against Lyme disease May 5th, 2017 CumberlandNewsNow.com Fourteen researchers have come together to form the Lyme Research Network to provide a co-ordinated way to respond to the research needs of the Lyme community, to develop research that looks at the issue from new perspectives, and to share findings. The researchers represent a variety of disciplines Continues →

June 3rd, Ottawa: We Need To Continue To Be VOCAL

We Need To Continue To Be VOCAL The Federal Framework on Lyme Disease Conference held in Ottawa in May of 2016 allowed for people suffering with Lyme disease to finally come together. Because of the opportunity, the idea of VOCAL was formed. VOCAL – Voices of Canadians About Lyme – is a cross-Canada Lyme awareness initiative whereby each province will Continues →

Ottawa: Canadian politicians, scientists, physicians, and advocates unite in request of Minister Philpott to insist upon an ethical process

[CanLyme Note: No disease in history has ever been so massaged and manipulated behind closed doors as Lyme disease (borreliosis)  Is profit the motive? Keeping people sick and on pills for every symptom seems to be the approved Canadian policy while they refuse to transparently look at better tests that are available, and they refuse to allow potentially curative treatments.] View Continues →

The role of patient advocates in Lyme disease policy should be limited – CanLyme does not agree

The article titled, The role of patient advocates in Lyme disease policy should be limited  seen here promotes stymieing debate. Here is my response to the article, as HealthyDebate.ca had already closed comments for debate due to some not so well wishing comments, … “Public Health Law… therein lies the problem with this commentary.  I would like to thank these two young lawyers Continues →

CBC News: Canadian Member of Parliament Karen Ludwig – More national round tables planned for Lyme disease awareness

June 10th, 2016 A national, all-party round table on Lyme disease in Ottawa recently brought to light some of the issues people face with getting answers and suitable treatment for the disease. New Brunswick Southwest MP Karen Ludwig co-chaired the meeting on May 30, attended by Lyme disease advocates and members of Parliament, including Green Party leader Elizabeth May. “Health Continues →

Parliamentarians convene bi-partisan panel to address Lyme disease

The illness could affect 10,000 Canadians by 2020. [per year] [CanLyme suggests we are possibly there already.]   PUBLISHED : Wednesday, May 25, 2016 12:00 AM Karen Ludwig heard it disturbingly frequently on the campaign trail last summer: constituents complaining of an obscure, little-understood illness that left painful and occasionally debilitating symptoms, and perplexed local health professionals struggling to pinpoint Continues →

A Drug Combination Screen Identifies Drugs Active against Amoxicillin-Induced Round Bodies of In Vitro Borrelia burgdorferi Persisters from an FDA Drug Library

Frontiers in Microbiology, May 23, 2016 Although currently recommended antibiotics for Lyme disease such as doxycycline or amoxicillin cure the majority of the patients, about 10–20% of patients treated for Lyme disease may experience lingering symptoms including fatigue, pain, or joint and muscle aches. Under experimental stress conditions such as starvation or antibiotic exposure, Borrelia burgdorferi can develop round body Continues →

CBC News Ottawa: Jim Wilson, CanLyme president, wants patients as equal partners on Lyme Borreliosis policy.

May 16th, 2016 As a result of Elizabeth May’s private member’s Bill 442 that passed unanimously through both the Canadian federal House and Senate, a national conference is underway in Ottawa with expert presenters from around the world.  Dogma of the past years, without GRADE level evidence is being drawn into question by global expert presentations. In Canada’s capital city, Continues →