Category Archives: News from CanLyme

Recent in: News from CanLyme

The Situation of Human Rights Defenders of Lyme and Relapsing Fever Borreliosis Patients: Edition One March 6, 2018

Thanks to the tremendous effort of Jenna Luché-Thayer the report was presented at the United Nations in Geneva, Switzerland, in June 2018 by several of us on the The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes representing many different countries affected by poor policy. Authors: Jenna Luché-Thayer, Holly Ahern, Robert Bransfield, Joseph Burrascano, Anne Fierlafijn, Theresa Denham, Huib Kraaijeveld, Continues →

G. Magnotta Lyme Disease Research Lab at University of Guelph is looking for participants in study.

July 19th, 2018 Excellent work is being done at the University of Guelph and we at CanLyme encourage people to participate… “The University of Guelph is currently recruiting participants for a study jointly offered by researchers in the Department of Population Medicine, and the G. Magnotta Lyme Disease Research Lab. The study (REB # 18-05-008) will examine the interactions that Continues →

June 23rd, 2018 A CBC online news article… CanLyme offers notes of how clever messaging from “officials” slants the truth so CanLyme is “setting the record straight”.

June 23rd, 2018 A CBC online news article… CanLyme offers notes of how clever messaging from “officials” slants the truth so CanLyme is “setting the record straight”. “Lyme disease surges in Quebec: What you need to know to protect yourself” “Lyme disease is treatable if it’s caught early enough” [CanLyme Note: Lyme disease, a borreliosis, is treatable even in most Continues →

To Hell and Back: denial of access to health care in Canada. Another disgraceful failure of the Public Health Agency of Canada, now a Human Rights issue

June 19th, 2018 This is another example of the disgraceful anti-science, anti-collaborative management of health care in Canada. Federal and provincial health authorities, devoid of oversight by patients and their experts have total disregard for the life and well being of untold thousands of Canadians whose numbers are growing annually. Holding meeting after meeting with no progress, no action plan, no Continues →

CanLyme has questioned the self-policing of physicians for years as it protects bad nonsense – NOW CHANGE MAY HAPPEN? Are our politicians listening?

[CanLyme Note: This is not isolated to Ontario, it is Canada and world-wide. Many provinces and countries have given the right to medical colleges and associations to self-police. The process has been corrupted and abused for years with many doctors given far too light consequences while on the other hand they use self-policing to force doctors to follow bad policy Continues →

‘Every season is tick season’: Experts warn of winter Lyme disease risk [bitten while xmas tree hunting]

[CanLyme Note: Ticks are active in temperatures of minus 4 degrees Celsius and above] November 22, 2017 by Marina von Stackelberg CBCNEWS People have ‘let their guard down’ and aren’t checking for ticks as weather cools, says zoologist   Laurenne Schiller loves taking her dog Cousteau for walks along Halifax trails as the weather cools. But even after the first dusting Continues →

Lyme Disease Patients File Federal Antitrust Suit Against Infectious Disease Specialists & Health Insurers

Nov 15th, Last Friday, 28 patients filed a federal antitrust lawsuit against the Infectious Diseases Society of America, eight health insurance companies, and seven medical doctors, Courthouse News reported yesterday, “because health insurers are denying coverage with bogus guidelines established by their paid consultants, who falsely say the disease can always be cured with a month of antibiotics.” Contrary to the often-reported claim that Lyme disease Continues →

Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation

[CanLyme Note: CanLyme was approached by Jenna Luché-Thayer early this year after her finding out that the World Health Organization (WHO) had held a meeting in November 2016 regarding updating the WHO International Classification of Diseases codes (ICD codes) relative to tick borne diseases. WHO is mandated to work with stakeholders yet no patient groups were asked to attend the Continues →

LANDMARK PARTNERSHIP PAVES WAY FOR CANADA’S FIRST RESEARCH FACILITY TO IMPROVE LYME DISEASE TESTING AND TREATMENT

New G. Magnotta Lyme Disease Research Lab to be Established at the University of Guelph; $1.4 Million Grant Awarded June 14, 2017 – GUEPLH, Ontario: The G. Magnotta Foundation for Vector-Borne Diseases has announced a $1.4 million grant over three years to the University of Guelph, Department of Molecular and Cellular Biology to undertake Canada’s first evidence-based translational medicine approach Continues →

With great sadness we report that the Canadian Lyme community has lost a valuable friend and asset.

Debra Fraleigh, an articulate and caring individual who worked endlessly behind the scenes researching evidence, evaluating government and medical leadership statements on Lyme disease, and then writing excellent letters of rebuttal, lost her battle with cancer on June 9th, 2017. Debra, like far too many Canadians also battled Lyme disease and then, battled the medical system that let her and Continues →

Watch Mount Allison University Lyme Research Network announcement partnering with the Canadian Lyme Disease Foundation

May 5th, 2017 One of the pillars within the mission statement of the Canadian Lyme Disease Foundation is promoting research. We are pleased to announce our partnership with Mount Allison University in assisting their Lyme Disease Research Network with funding. Developing a broad capacity within Canadian universities to cope with what the government of Canada has admitted is a coming Continues →

Mount Allison University and Canadian Lyme Disease Foundation announce partnership in research.

Mount A researchers uniting expertise against Lyme disease May 5th, 2017 CumberlandNewsNow.com Fourteen researchers have come together to form the Lyme Research Network to provide a co-ordinated way to respond to the research needs of the Lyme community, to develop research that looks at the issue from new perspectives, and to share findings. The researchers represent a variety of disciplines Continues →

June 3rd, Ottawa: We Need To Continue To Be VOCAL

We Need To Continue To Be VOCAL The Federal Framework on Lyme Disease Conference held in Ottawa in May of 2016 allowed for people suffering with Lyme disease to finally come together. Because of the opportunity, the idea of VOCAL was formed. VOCAL – Voices of Canadians About Lyme – is a cross-Canada Lyme awareness initiative whereby each province will Continues →