Tag Archives: borreliosis

Chronicle Herald: COUNTERPOINT: Hitting the wall of denial with chronic Lyme

[CanLyme Note: Robert Strang has been purveyor of misinformation relative to Lyme disease; it’s prevalence, the chronic nature of the disease, and the ability of the bacteria to survive short term antibiotics, for so long and with such an anti-science, pro-opinion bias  see that he is disqualified to represent public health, yet the Nova Scotia government has done nothing to protect it’s Continues →

Nova Scotia’s top doctor takes heat over retweet dismissing chronic Lyme disease

[CanLyme Note: Once you read this article you will see that the Nova Scotia Minister of Health chimed in with the usual pre-formatted line that the province follows evidence-based guidelines. For research and science to become evidence, it requires transparent debate with stakeholders. There is no more important stakeholder in health care than the sick patient and their experts. No such Continues →

Lyme advocates say Canada offers “toxic tokenism” to patients

The Canadian government recently announced new investment in Lyme disease research. However, Canadian Lyme advocates fear that the patient voice will be excluded from the decision-making process. In the following article, the Canadian Lyme Consortium (CLC)–made up of advocates, patients, researchers and practitioners–offers background and context. By Vett Lloyd, PhD; Liz Zubek, MD, CCFP FCFP; Sue Faber and Jennifer Kravis, co-founders, LymeHope; Janet Sperling, CanLyme; Linda Kelso, Continues →

Lyme Encephalopathy: Impact on Quality of Life

B.L. Goldklang (1), S.S. Festa (1), and J.S. Hason (1,2). Lyme Disease Coalition of New York and Connecticut, Katonah, NY, USA (1); Arthritis Foundation, Long Island, NY, USA (2). Lyme encephalopathy has been defined in the medical literature as a “mild confusional state” characterized by subtle disturbances in memory, mood, and sleep.1’3 To patients with this syndrome, however, this mild Continues →

Canadian government asked by international Health Equity committee to reverse secretive, harmful, and unethical interference that will affect mothers and children worldwide.

December 22, 2018 Dear Prime Minister Trudeau, Honorable Minister Ginette Petitpas-Taylor, Honorable Minister Jody Wilson-Rebould, Dr. Mithani, Dr. Tam, Honorable Andrew Scheer, Elizabeth May and Jagmeet Singh and Kimberly Elmslie, I am the Director of the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee). The Ad Hoc Committee is fully voluntary international group including Continues →

Doctors, public left in the dark on danger to babies – Chronicle Herald

Published in the Chronicle Herald newspaper December 21, 2018 by Jane Bailey The following statement is false. You can only get Lyme disease from a black-legged tick. The next two statements are true. You can pass Lyme disease to your unborn baby. Your baby can suffer very serious adverse outcomes, including from miscarriage, stillbirth, and newborn death, as well as Continues →

United States: Tick-Borne Disease Working Group 2018 Report to Congress

November 14th, 2018 “A comprehensive understanding of the full economic and societal cost remains unknown. It is likely orders of magnitude higher and potentially a $50- to $100-billion-dollar problem for the United States, although more research is needed (Vanderhoof & Vanderhoof-Forschner, 1993; Zhang et al., 2006).” “The U.S. National Institutes of Health (NIH) and CDC spend $77,355 and $20,293, respectively, per new surveillance case of HIV/AIDS, and $36,063 and Continues →

Canadian Lyme disease patient groups united in rejecting the ‘one research network only’ concept of the federal government

[CanLyme Note: There is already another pan-Canadian research network that has been up and running for over a year, the Canadian Lyme Consortium. This network works closely with the patient groups together with physicians and scientists and has from it’s formation.] Joint press release “Lyme patient groups from across Canada are unified in their concern over the federal Minister of Health’s Continues →

Lyme disease vastly under-detected in Canada, according to new study

Mount A biologist co-authors research that suggests only 3-4% of Lyme cases are officially diagnosed Friday October 20th, 2018 A new study published in the journal Healthcare suggests the vast majority of Canadians who have Lyme disease are slipping through the cracks. The research was done by Vett Lloyd, a Mount Allison University biology professor, and Dr. Ralph Hawkins, a Continues →

‘I don’t wish this on my worst enemy’: Caledon-area woman says Canada’s medical system is failing people living with Lyme disease

Oct. 2, 2018 Caledon Enterprise newspaper Janice Barry was at a vet office in Alliston with her dog when a poster caught her eye. It listed the symptoms of Lyme disease in dogs. It sounded familiar. For over a year, the former Caledon resident had been experiencing flu-like symptoms — daily nausea, weight loss, chronic fatigue, her hair was falling Continues →

One in three ticks in Canada’s capital, Ottawa, carries Lyme disease yet no help for the tens of thousands chronically ill across the country due to false information.

[CanLyme note: For decades Canadian health care leadership have downplayed the prevalence of Lyme disease (borreliosis) in ticks based upon poor surveillance protocol while ignoring reams of published research. They further downplayed the prevalence of this disease in humans with an outrageous, dangerous and deadly adherence to a testing policy that they knew missed most cases. Canadians must be fearful of Continues →

Breaking News: Canada Acknowledges In Utero Transmission of Lyme Disease!

Canadians Concerned About Lyme Disease OCT 5, 2018 — “What is the value of one child’s life?” As Canadians, we soon will be coming together to celebrate a cherished national holiday: Thanksgiving. At LymeHope we are genuinely thankful for the incredible news which we will now share with you. This news pertains to all Canadians suffering from or concerned about Continues →