The Situation of Human Rights Defenders of Lyme and Relapsing Fever Borreliosis Patients: Edition One March 6, 2018
Thanks to the tremendous effort of Jenna Luché-Thayer the report was presented at the United Nations in Geneva, Switzerland, in June 2018 by several of us on the The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes representing many different countries affected by poor policy.
Authors: Jenna Luché-Thayer, Holly Ahern, Robert Bransfield, Joseph Burrascano, Anne Fierlafijn, Theresa Denham, Huib Kraaijeveld, Jennifer Kravis, Mualla McManus, Clement Meseko, Jack Lambert, Sin Hang Lee, Kenneth Liegner, Christian Perronne, Kenneth Sandström, Ursula Talib, Torben Thomsen, Jim Wilson.
Expert Reviewers: Gabriela Barrios, Barbaros Cetin, Joseph Jemsek, Jose Lapenta, Natasha Rudenko, Armin Schwarzbach. Advisors: Cees Hamelink, Astrid Stuckelberger.
The World Health Organization (WHO) received a submission from our Ad Hoc committee in March 2017 to upgrade the ICD codes to better reflect the science and clinical reality of patients. In June 2018 the WHO announced an improvement to the ICD 11 codes that somewhat better reflect some of the longer term treatable chronic symptoms of Lyme disease, but WHO is still not acknowledging the true seriousness and chronic disabling nature of Lyme borreliosis.