MacLean’s magazine: How the new impatient patient is disrupting medicine
Patient activists have never been as vocal. But are they truly being heard?
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Patient activists have never been as vocal. But are they truly being heard?
October 21, 2017In late August, Sue Faber and Jennifer Kravis hauled close to 150 pounds of documents and scientific research into a Health Canada office in Ottawa. The two women, co-founders of Lyme-patient advocacy group LymeHope, had been granted a 15-minute audience with then federal health minister, Dr. Jane Philpott, and Dr. Theresa Tam, head of the Public Health Agency of Canada. They’d lobbied hard for the face time and intended to make the most of it.
May 16th, 2016 As a result of Elizabeth May’s private member’s Bill 442 that passed unanimously through both the Canadian federal House and Senate, a national conference is underway in Ottawa with expert presenters from around the world. Dogma of the past years, without GRADE level evidence is being drawn into question by global expert…
[CanLyme Note: We have had many meetings with the BC CDC over the years pointing out the problems with their testing but were completely ignored. Even this more sensitive test will miss many cases. Meanwhile mothers were being accused of having Munchausen by proxy syndrome by doctors at the BC Children’s Hospital simply because they were…
Nov 13th, 2018 A Mount Kisco physician who specializes in the treatment of Lyme disease is suing a blogger for $1 million for allegedly misrepresenting his disciplinary action for professional misconduct. Dr. Daniel Cameron sued Jann Bellamy, a Tallahassee, Florida lawyer and activist for science-based standards in health care, Nov. 8 in federal court in…
Published on April 10, 2014 Today in the Legislature, Tim Houston, Progressive Conservative MLA for Pictou East, introduced a bill to develop a comprehensive Lyme Disease Strategy for Nova Scotia. “I am proud to be able to bring forward this long overdue legislation to address patients’ concerns respecting the diagnosis and treatment of Lyme Disease…
[CanLyme note: This article says only one tick per year is testing positive for Lyme disease. Research has shown us that their tests are not capable of detecting all the known strains of Lyme borreliosis. If you do not have the correct test for all the strains you have no idea of true prevalence. The government…
Abstract Objective: Chronic Lyme disease has been a poorly defined term and often dismissed as a fictitious entity. In this paper, the International Lyme and Associated Diseases Society (ILADS) provides its evidence-based definition of chronic Lyme disease. Definition: ILADS defines chronic Lyme disease (CLD) as a multisystem illness with a wide range of symptoms and/or…