CTV News: CanLyme discusses Lyme disease and misinformation

11 Comments

1. I sent an email to them and asked to have another interview where correct information can be given

2. Please find a more informed person to use in your interviews. Dr. Rau does not know what he is talking about, and this will have negative public health consequences.

3. I felt the young woman who has been living with lyme disease and who has had to go to the U.S. and spend thousands of dollars provided more helpful information than the doctor. It’s too bad she wasn’t able to speak longer. I was not surprised by the doctor’s responses at all. Same old. Same old.

4. Good “correct” information Jim. I cringed when I heard the good(?) Dr. Rau stae that you can’t get Lyme if you live in the city. The unfortunate thing is that people like Dr Rau and others are constantly giving misinformation to the public, and the public not knowing any better believe them. That’s why it’s vital that the proper information, science based and not opinion, be given to the public. Keep up the good work.

5. Good “correct” information Jim. I cringed when I heard the good(?) Dr. Rau state that you can’t get Lyme if you live in the city. The unfortunate thing is that people like Dr Rau and others are constantly giving misinformation to the public, and the public not knowing any better believe them. That’s why it’s vital that the proper information, science based and not opinion, be given to the public. Keep up the good work.

6. agreed. Great interview, Jim. I cannot believe how this Dr. Rau speaks as if he knows what he is talking about. Packed with mis-information and lies.

7. I been sick for now almost 5 yrs and still fighting with doctors, one micro-biologiste even kick me out of her office stating that she didnt want to know anything regarding Morgellons/Lyme Desease because its new and she is too old and do not want to learn about Lyme Desease and its co-infections.

8. Insufficient and incorrect information. I got Lyme in Rouge Valley or Morningside park in 2009. Early onset acute. Was treated with heavy antibiotics for over a year but still not completely better. I personally know a doctor who got it gardening in North York in the front yard. There is tall grass, uncut grass on individual properties and animals can bring it into your home. I found an infected tic on my dog and that is how I found out what was causing my illness. We are all at risk.

9. Yet another Infectous Disease specialist spouting misinformation. We don’t even have a true Lyme test in Ontario – we have a “screen”. Interesting that my daughter went undiagnosed for 3 years in Fort Erie – the very area mentioned for having Lyme all along. Infectious Disease specialists won’t even take the referral from her family physician because they don’t believe chronic Lyme exists! Maybe if you recognized symptoms right away and had decent testing she would have been treated for acute Lyme in a timely fashion.
   Ontario Dr.’s should be ashamed – especially Infectious Disease Specialists. My daughter would have better care if she was infected by an insect from Africa or South America. Little help for a tick bite in her home town.

10. I got Lyme in 2009 in a Scarborough ravine. Negative blood tests even after five years. Clinical diagnosis was early onset acute Stage 3. My dog was treated as the deer tic was removed by the vet. The vet didn’t wait until the tic was determined to be a Lyme carrier – he took no chances. Early treatment is essential which means we need our medical professionals to take this seriously. No…..it is not just in tall grass. The doctor presenting on this show, while meaning well, did not accurately portray how easily this disease can be contracted. It’s on our own property, in gardens, on animals.

    Please do another report and ensure that representatives from Canlyme are there to advise the public.

11. The “disease specialist” speaking on Lyme is obviously a flunky. But then again, that is exactly the sort of person medical authorities want in such a position. Deny the existence of Lyme and save the authorities the expense of antibiotic treatment. The heck with a patient’s agony and pain. But firstly, why not start with a definitive test for Lyme disease, Instead of the present state of denial and smoke and mirrors.

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