Trent Nimeth suffers as his parents try to get diagnosis from U.S. validated in Canada
At only 18-months-old, Trent Nimeth’s eyes were rolling to the back of his head. Now, at 7-years-old, he complains because he feels his brain is on fire.
He has been tested for Lyme disease in a private lab in the United States. His results came back positive. He has not been tested in Canada.
Trent and his family are caught in the uncertain place Lyme disease now holds in Canadian medicine. Front-line physicians are responsible for recognizing patients that need to be tested, but experts say Lyme, as an emerging disease, is still unfamiliar territory for many of them.
[CanLyme Note: Recent research shows that only 3 to 4% of actual cases are diagnosed in Canada leading to about a 20 fold under-diagnosis putting true numbers into epidemic range.]
At the same time, public health agencies are issuing more warnings about Lyme disease and the spread of the ticks that carry it. So more and more people are concerned about the disease and some see it as the answer to unexplained symptoms.
But then they find they have to look elsewhere to get tested.