Canadian’s: Take Control of the Lyme Research Agenda – join webcast October 12th
posted October 2nd, 2016
From Mount Allison University,
Take control of the Lyme research agenda
Mount Allison University, with the generous support of the Canadian Lyme Disease Foundation, has established a Lyme disease research node.
We invite members of the Lyme community, family, caregivers, healthcare providers, veterinarians and all others to join us for a one hour live roundtable webcast on Wed October 12 at:
11:30 Pacific time zone (BC, YT),
12:30 Mountain time zone (AB, NT),
1:30 central time zone (SK, MB),
2:30 Eastern time zone (ON, QC),
3:30 Atlantic time zone (NB, NS, PEI) or
4pm Newfoundland time zone (NL).
To join the roundtable webcast, simply log into https://meet44326647.adobeconnect.com/lymediseaseroundtable/
at the day and time above.
During this webcast, the Mount Allison researchers will introduce themselves and explain their areas of expertise and discuss Lyme research. We welcome comments and suggestions from the community of research priorities and initiatives.
We recognize the Lyme community as a vital and equal partner in Lyme research.
We want to hear from you.
The Canadian Institute of Health Research (CIHR), our federal research funding body, embraces patient involvement as well. Here is a direct quote from their website, “It is of vital importance as “engaging patients in health care research makes [investments in] research more accountable and transparent, provides new insights that could lead to innovative discoveries, and ensures that research is relevant to patients’ concerns. The international experience with engaging citizens and patients in research has shown that involving them early in the design of studies, ideally as early as at the planning stage, leads to better results.“
Australian time does not fit Canadian time!
Will I be able to observe a recording of the event
Regards
Noel
https://www.youtube.com/watch?v=pcsqUY-574A&feature=youtu.be
Unfortunately I will be working. However, I really hope a BC patient’s lack of access to a C6 can be addressed. I am a classic case with tick attachment and bullseye rash, wih a timeline and symptoms straight from a Merck Manual. Physician ordered Lyme serology was negative. When my doctor tried to order a C6, it was not possible without first being screened by our BCCDC. I even tried to have it drawn and shipped to Winnipeg at my own expense through a private lab. I was called back by the lab and the assistant on duty had spoken to a microbiologist at the BCCDC who had educated her on the superiority of the standard 2 tier test and the rarity of a true Lyme infection. She informed me that she would send my blood draw to them first and a potential positive would be checked via our national lab. Staff out the National Microbiology Lab in Winnipeg were unaware of the roadblock we have to the C6 here in BC.