CBC News Ottawa: Jim Wilson, CanLyme president, wants patients as equal partners on Lyme Borreliosis policy.

May 16th, 2016

As a result of Elizabeth May’s private member’s Bill 442 that passed unanimously through both the Canadian federal House and Senate, a national conference is underway in Ottawa with expert presenters from around the world.  Dogma of the past years, without GRADE level evidence is being drawn into question by global expert presentations.

In Canada’s capital city, Ottawa, CBC News interviews Jim Wilson, president of the Canadian Lyme Disease Foundation. An error he made in the interview was that his daughter contracted Lyme borreliosis in 2001, not 1991.

[Wait for commercials then scroll to or click at 23:30 on the time-bar to get to the Lyme borreliosis segment] 

Watch interview

6 Comments

  • Darlene says:

    How can you get an accurate test in Nova Scotia?

  • amanda wilson says:

    When will we Know if we can be one of the patients involved? I wasnt able to attend the conference and my internet wasnt working, but both my husband Jeff and I would love to participate in this. Thank you

  • Linda says:

    Thank you so much for doing this story. Thank you Jim Wilson for fighting our fight with us.

  • Ember says:

    Thank you Jim. there is hope

  • Fred Boyd says:

    Hi I have a disease called Transverse Myelitis but at first they tested me for Lyme disease. Are they similar? Tks Fred

    • Debra says:

      Transverse myelitis is a neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. This damage causes nervous system scars that interrupt communications between the nerves in the spinal cord and the rest of the body. It is not really a disease, but TM can be the result of disease. I am also a TM patient. In my case it was called ideopathic (i.e. idiot doctor, pathetic patient) mostly because I was not tested for anything at the time. My TM is a result of having Lyme disease, despite finally being tested and being negative with Canadian testing.

      In Canada (and with commercial labs in the U.S.) Lyme testing is notoriously unreliable, so a negative test does not mean that you could not have Lyme. I was tested in the U.S. by IGeneX and diagnosed clinically by a Lyme literate medical doctor in the U.S.

      Dr. Horowitz’s Lyme-MSIDS Questionnaire may be helpful to figure out whether your TM might be caused by Lyme. This questionnaire is available from:
      https://docs.google.com/viewer?a=v&pid=sites&srcid=ZGVmYXVsdGRvbWFpbnxjYW5nZXRiZXR0ZXIyfGd4OjM3ZmFjMzM2MjM1NTMxYmI