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Hearing for bill H. 901 and S. 502, An Act Relative to Lyme Disease Treatment Coverage.
Date: Tuesday, October 20 at 11:00 am in the Gardner Auditorium at the Massachusetts State House
For those within the Chronic Disease Syndrome/ME and fibromyalgia community there was some relief expressed in that finally their diagnosis is being legitimized. This will be one more step in helping with disability claims for conditions that have all too often been labelled as somatoform or, all in the head. The clinic came about as…
t started with her legs vibrating in March 2014. Elementary school teacher Shawna Hughes had dealt with some back pain issues, but this was different. She went to doctors. Specialists. Seven neurologists. No one could figure out what was wrong and her condition got worse. She was shaking all the time and her body was…
December 22, 2018 Dear Prime Minister Trudeau, Honorable Minister Ginette Petitpas-Taylor, Honorable Minister Jody Wilson-Rebould, Dr. Mithani, Dr. Tam, Honorable Andrew Scheer, Elizabeth May and Jagmeet Singh and Kimberly Elmslie, I am the Director of the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee). The Ad Hoc Committee is…
[CanLyme Note: this article includes some information we disagree with. Treating with a single dose of antibiotics lacks GRADE level science to support it as an effective approach and was a closed door decision showing arrogance, not ethical science. Opposing experts and advocates were not consulted therefore the policy is invalid – longer durations of…
The saga of the retrovirus XMRV and chronic fatigue syndrome appears to have ended, now that researchers in a federally funded study said they found no relationship between the retrovirus and the illness. The controversy dates back to 2009, when a paper in the journal Science found a possible connection between chronic fatigue syndrome and…
Tick’d Off Original Air Date: Friday, May 31, 2013 Alberta’s tick surveillance program is gathering data on just how many ticks we’ve got in Alberta and how many of them are carrying lyme disease.We talk to Susan McInnis, from the Lyme Disease Association of Alberta and Marianne Middelveen, from the International Lyme and Associated Diseases…
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The first 25 minutes of this show the power of advocacy and how thoroughly the three speakers, Pat Smith, Dr. Elizabeth Maloney of ILADS, and attorney Wendy Murphy have mastery over the subject of Lyme disease and the unmet needs of their clients/ members in short 3.5 – 4 minute presentations. Video 1 features Dr. Sam Donta who turned his back on his own IDSA guidelines committee and his observation that the wrong question was asked when the first long term government trials of antibiotics were used for Lyme. He wanted to know what it was about the 2 antibiotics used that made this trial fail.