Canadian Lyme disease scientists start petition for more transparency and involvement on all aspects of Lyme policy development
The Canadian Lyme Science Alliance (CLSA) is a fledgling organization dedicated to enhancing our understanding of Lyme disease, and ensuring that health policy and guidelines accurately reflect available scientific data. It represents both academic researchers and clinical practitioners.
The first major initiative is a petition that articulates several objectives that should be met by the task force representing the Federal Framework on Lyme Disease (Bill C-442). Goals include involving patients and advocates in the process of policy development, undertaking a transparent review of available literature to generate solid, evidence-based guidelines, allocating resources to Canadian researchers to address deficits in the literature and identify uniquely Canadian perspectives on Lyme disease, and finally, ensuring that the Lyme disease dialogue remains open as new research becomes available.
Anyone with a scientific or medical background is invited to sign this petition. Patients, caregivers, and advocates are encouraged to share this information with their health care teams. Please visit www.lymesciencealliance.org to read the CLSA mandate, and view / sign the petition.