New Hope for Sufferers of Chronic Disease [is questioned] – Global TV Vancouver
For those within the Chronic Disease Syndrome/ME and fibromyalgia community there was some relief expressed in that finally their diagnosis is being legitimized. This will be one more step in helping with disability claims for conditions that have all too often been labelled as somatoform or, all in the head.
The clinic came about as a result of an internal report by a senior executive within the Public Health Services Agency of BC that addressed the Lyme Disease controversy. The report supported the claims of the patients that testing was poor, diagnosis and treatment were non-existent, physician education was poor, and that much needed to be done. Eight recommendations were given.
Lyme Disease was the instigator of the clinic, but it quickly became sidelined by the very group implicated in the government internal report who have done such a poor job on Lyme Disease. Lyme Disease will not be addressed seriously at the clinic and there are no research studies on the horizon that will improve anything in that regard. Volumes of research have been completely ignored, and now they ask us to wait for more science… to be ignored.