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No Warranties or Representations
Lyme Disease symptoms vary from person to person. (lymes disease lyme's disease lime disease limes disease)
The data and information presented in this web site are presented in good faith and believed to be accurate regarding Lyme disease (commonly misspelled lymes disease lyme's disease lime disease limes disease) and other related diseases. Any and all liability for the content or any omissions including any inaccuracies, errors, or misstatements in such data or information is expressly disclaimed. The web site is compiled for the sole purpose of informing community members of resources and information pertaining to Lyme Borreliosis Disease and its coinfections. Lyme disease symptoms may vary from person to person.
The Canadian Lyme Disease Foundation, Directors and members are not liable for any direct or indirect damages or any damages whatsoever resulting from loss of use, data or profits, whether in an action of contract, negligence or other tortious action arising out of or in connection with the use or performance of information available from this website.
Consult a qualified Lyme ( Borreliosis ) Disease literate doctor for medical advice if Lyme Disease is suspect to discuss your Lymes Disease Symptoms.
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We are a federally registered charitable organization (864437603RR0001) dedicated to promoting research, education, diagnosis and treatment of Lyme and Associated Diseases since 2003
Write Government Reps Tell them your problems, Ask them why so little is being done.
UPCOMING EVENTS & FUNDRAISERS
Next... The Great Canadian Lyme Disease Freefall !
- A big thank you goes to the Penticton Secondary School in BC who put on a very successful fundraiser for CanLyme - June 2010
- Golf Tourney raises $52,000.00 for the Canadian Lyme Disease Foundation
The 2010 Gabe Magnotta Memorial Golf Tournament which was held Monday, June 14th, 2010 in Ontario raised $52,000 for CanLyme. It was a fantastic event with good weather, good golf on an excellent golf course, and great food. Magnotta Winery and their staff as usual put on a fantastic event. Thank you Rossana Magnotta and Magnotta Winery staff!! Read more here
We are one step closer to having a research program going in Canada.
You can help too with your donation or,
Order the special CanLyme run of Magnotta wine with proceeds from every bottle going to CanLyme: White, Red
Order the beautiful Lyme awareness pendant, and/or bracelet with a silver CanLyme logo leaf.
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Recent News
Winnipeg, MB: Lyme disease found beyond South East Manitoba
Thunder Bay, ON: Lyme disease confirmed in the Thunder Bay region.
Newfoundland: Lyme disease found in Newfoundland
Edmonton, Alberta: Multiple Sclerosis patients not waiting for the slow wheels of government
Richmond, BC: Disease expert dismisses Lyme diagnosis
Manitoba: Lyme disease can do more than tick off your dog
Toronto Star: Lyme disease on the rise
New Brunswick: New Brunswick added to watch list
Victoria: Lyme and Ehrlichiosis in dogs
Windsor Star, Ontario: Lyme disease on the rise
Global TV, Calgary: Lyme disease warning for Albertans
CBC radio, The Current: Anna Maria Tremonti interview's Dr. McShane
Vancouver, BC: Listen to June 7th, 2010 Coop radio 102.7 FM, Lyme disease
Waterloo, ON: Scope of Lyme disease in region, country contested
Simcoe, Ontario:To only feel 21 again
Edmonton Journal: Lyme disease tricky to diagnose
CTV - The National News: Lyme Warning
Edmonton Journal: Lyme disease ticks found outside city
CTV - News, Calgary: Lyme disease carrying ticks found in Calgary, High River and Ardrossan areas in Alberta
Pictou Advocate, NS: Lyme disease increasing: local residents
Richmond News (BC):Part 1 - Page 3 & 4, The Goertzen's, an excellent articlePart 2 - 1,001 ways to wish get well soon
Montreal Gazette: interviews Dr. Mc Shane, Canadian Lyme victim who now treats Lyme disease at her New York state clinic
Montreal Gazette: reports on Lyme disease, Quebec says first case in 2008 yet see this link on CanLyme re: 1984 First Canadian case ... Go to page 3
Regina Leader-Post:
... Regina woman Marion Nicoll questions Canadian diagnosis of Lyme disease
Winnipeg Free Press: ... Researcher completes thesis on Lyme disease, uncovers many problems with present policy making system
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Warning...ticks can come in on Christmas trees
Experts warn pet owners of impact of climate change
Possible Cure For Multiple Sclerosis... see investigative report
Lyme documentary finalist for Academy Awards!!
Watch Canada's CTV investigative journalism show W-5 that aired Saturday, Nov. 14th, 2009 titled 'Out of the Wild'.
An excellent piece. Please pass this along to your family, friends, politicians, physicians... everyone you can think of. We can save lives from being destroyed through education.
Email W5 directly to show your appreciation.
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Wall of Hope '09 pictures and news coverage including CTV national news.
Alarming 2008 USA numbers stop at the Canadian border?
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New book by thirteen Lyme-Literate health care practitioners.
Experts don't agree on testing - Canada
Deer ticks on the move U.S, Canada
Canada's pioneering Lyme doctor/researcher awarded Order of Canada
Pt.2 National Post, Lyme and the tale of two tests
Pt.1 National Post, Debate over Lyme disease lingers on
Global TV, Ontario tackles Lyme disease
Knowledge key in fighting Lyme disease
Scientist urges precaution, not panic, to combat Lyme disease
Much work still to be done in fight against Lyme disease
Lyme law passes both House and Senate in Connecticut, where it all began in North America in 1975 (well that was when they recognized an old disease).
Another study shows how B.burgdorferi can survive antibiotics
Shining the light on Lyme disease
Lyme disease: Tiny tick, big problem - CBC
Lyme disease alive and well, Ontario
Getting Lyme disease some awareness, National Post
His ALS was Lyme disease
German scientists reveal 3D view of spirochete
Ontario Winery Tackles Lyme Disease with Radio Campaign.
Tick, tick, tick
Lyme disease carrying ticks found in Niagara
Ticks catching a free ride on lots of critters
Veterinarians worried about Lyme disease in Ontario as canine tests find more
Lyme..."more
than AIDS and West Nile combined!"...
CBC radio, Lyme cases in Nova Scotia said to be missed by the hundreds, April 2009
Lyme Neuroborreliosis: Manifestations of a
Rapidly Emerging Zoonosis
Increasing Incidence of Rocky Mountain Spotted Fever among the American Indian Population in the United States
BC MLA questions College of Physicians' ability to be unbiased
CanLyme Receives $500,000 Donation
Lyme Action Group applauds Connecticut state Bill being put forward
Ontario medical college harms patients.
Dr. Kucan dies suddenly, strong Lyme advocate for son.
Pioneering Lyme doctor in BC receives Order of Canada
Plenty of Guidelines, but Where's the Evidence? NY Times
Her progressive Multiple Sclerosis was Lyme, now able to walk and drive again
International Lyme And Associated Diseases Society (ILADS) Announces Physician Training Program
-- Human to human transmission of tick-borne disease
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Caught between a tick and a hard place, Alberta.
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2008 ILADS / LDA Scientific Session Summary
MP Judy Wasylycia-Leis pushes Canadian feds to create anti-Lyme strategy, see also, her question tabled in parliament.
Attorney General orders Infectious Disease doctors to do an open review of their Lyme guidelines due to conflicts of interest, and for ignoring evidence-based science that disagrees with their pre-determined positions. Read here
Real-Time High Resolution 3D Imaging of the Lyme Disease Spirochete Adhering to and Escaping from the Vasculature of a Living Host, University of Calgary, Alberta, Canada
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Read Canadian Lyme News
Global Lyme News
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Lyme disease is now an epidemic in several US states.4
Estimates are now at 3 million cases of lyme disease in the US in 3 decades. Most of these
cases are from states that border Canada yet Canada reports it has only had a few hundred cases...?
See an epidemiological map of what is immediately across our border.
Canada has no such info - yet where we look we find lyme.
Lyme borreliosis is now acknowledged as the most highly prevalent arthropod-borne human disease in northern temperate regions of the world5. Canadian medicine and science, due to the lack of recognition of the clinical diagnoses, combined with lack of surveillance and research, places us at the bottom of the scale in dealing with this serious disease.
We are years behind.
Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Psoriatic Arthritis, Infectious Arthritis, Osteoarthritis,
Fibromyalgia, Chronic Fatigue Syndrome, Interstitial Cystitis, Gastro esophageal Reflux Disease, Fifth's Disease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn's disease, ménières syndrome, reynaud's syndrome, Sjogren's syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses.
If you have received one of these diagnoses please go to our
symptoms page and see if you recognize a broader range of symptoms.
If you are a doctor please re-examine these diagnoses, incorporating Lyme in the differential diagnoses.
If you feel you may have Lyme Disease you are encouraged to contact us.
If you have a rash please photograph it (a close-up) and send it to us with as much detail about date/time, place,
any tick bite noticed. Please include your name and phone number for our records in trying to track this disease.
All information is confidential and shall never be released to anyone without your written consent.
Ronald S. Ferris, Calgary, Alberta, deceased (1945-2000),
made many a profound statement about Lyme Disease in Canada prior to his death.
Read more about Ron and the impact he had on others and take the time to read that interesting and informative web site.
Lyme Disease....A vector borne disease (ticks are one known vector)
which has caused controversy in the past decades
because of its difficult diagnosis and treatment. The organism is highly fastidious, growing extremely slowly in tissue culture (not
bacteriological) media. The vast majority of body fluid or tissue samples from patients with Lyme disease
do not yield spirochetes on culture. Lyme disease is thus usually clinically diagnosed. Possible detection of serum antibodies to
burgdorferi may only augment the clinical diagnosis. However, acutely antibodies may not occur in
detectable titer, making early diagnosis difficult. Many later stage seronegative patients are very
symptomatic and treatment intervention has been shown to be very effective. The tick O.hermsii has been implicated as a possible vector and some Canadian cases are reviewed.
Lyme mimics many other diseases but clearly an educated doctor will recognize lyme symptoms and include
lyme in the possible diagnoses.
Lyme disease is not new to Canadian health leadership but you would not know this if you have ever had the pleasure of your doctor trying to convince you that Lyme disease is rare in Canada... we magically missed the epidemic every other northern hemisphere country has.
...Here is a medical report from 1988.
Lyme Disease is not the only tick borne disease in Canada but can be
complicated by multiple tick-borne co-infections such as Ehrlichiosis, Babesiosis, and
Bartonella. Other tick borne diseases include Tularemia, Tick Paralysis and Rocky Mountain Spotted Fever.
Lyme Disease is determined by clinicians,
not labs
...no lab has a gold standard test to date, some labs are just better than others.
The only treatment available to date is antibiotic. If caught early and treatment given in
sufficient dosage over sufficient time all is well in most cases. There remains a significant
number of treatment failures usually as a result of insufficient dose/time of treatment and/or late diagnoses.
These treatment failures have proven to benefit significantly from longer term antibiotic treatment and
patients sometimes have to be very demanding to receive such treatment.
One has to be realistic...not being able to find something by available methods in science means nothing
to the sick patient who recovers after many weeks/months of appropriate treatment.
Therein lies the difficulty and undermining of appropriate treatment. The cost
of treating lyme disease with antibiotics can be expensive in the relative short term
so without a doubt business/politics
become involved. Without a definitive test the door is left open for money to rule
over health. However, the cost of not treating lyme, or treating it inadequately, is infinitely more
expensive.
The majority of research is funded/lobbied by 1. Insurers (motivated to keep treatment costs/duration
to a minimum). 2. Governments (heavily lobbied by private/public insurers as well as tourism dollars).
3. Drug manufacturers (motivated to peddle drugs).
The results of this heavily influenced research are what we educate our medical students with,
who then become our doctors with a bias.
Therefore it takes the wise front line physician to wade through the swamp and treat
the patient using good sound judgment. The better doctors learned early on that some of what
they were taught just didn't add up when they encountered their real world patients. Common sense
still applies...even in science.
Symptoms may show up fast, with a bang, or very slowly and innocuously. They may creep into ones
life over weeks, months or even years.
While antibiotic treatment carries risk, it pales in comparison to the serious danger and cost
(in productivity, income and family) of
developing late stage illness that may develop within weeks even before the first lyme
tests have returned.
Learn here what can and should be done.
Consult a qualified Lyme Disease literate doctor for medical advice if Lyme Disease is suspect.
Ref:
1. CDC MMWR Weekly
3. http://www.medtech1.com/research_center/cond20.cfm/48
4. http://www.canlyme.com/confirmedUScasesto2003.html
5.Lyme Borreliosis: Biology, Epidemiology and Control
Edited by J. S. Gray, University College Dublin, Ireland, O. Kahl, Free University of Berlin, Germany, R. S. Lane, University of California at Berkeley, USA, and G. Stanek, University of Vienna, Austria
September 2002
480 pages
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Lyme Testing Labs
Are you a victim of colloidial silver poisoning
Many cases of argyria (permanent dark discoloration of skin caused by overuse of medicinal silver preparations) are now surfacing.
For help contact argyria@yahoogropups.com
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Ending Denial: A Canadian Public Health Disaster
